People Living With Epilepsy Exploring socio cultural determinants affecting their life
Socio-cultural determinants affecting People Living with Epilepsy (PLWE) were explored between August 2010 and November, 2011 in Bareilly district of North India. Results reveal various aspects of their life: onset of first seizure, duration of suffering, their perception about daily life, marriage, family burden, etc. Further, it explored their activities during before and after treatment? PLWE face Stigma in the family as well as in their community. The capacity to do work and earn and expenditure incurred on hospital visits were major determinants affecting their life. Relationship of PLWE with other people and involvement in Community are other crucial socio-cultural determinants affecting their life.
Keywords: Epilepsy, PLWE, Seizure, Stigma.
Degen R, Degen HE, Roth C. (1990). some genetic aspects of idiopathic and symptomatic absence seizures: waking and sleep EEGs in siblings. Epilepsia. 31(6):784-94.
Gourie-Devi,M, G.Gururaj and P Satishchandra (2004). Delivery of Epilepsy Care to the Community: Towards the national Epilepsy control Programme. In Mental Health-An Indian perspective (1946-2003) Ed. S P Aggarwal, DGHS, Ministry of H & FW, New Delhi.
Gourie-Devi,M, G.Gururaj, P Satishchandra and D K Subbhakrishna(2004). Prevalence of Neurological Disorders in Bangalore, India: A Community – Based Study witrh a comparison between Urban and rural Area. Neuroepidemiology 2004; 23:261- 268.
Pal, D K ; Das T., Sengupta, S(1998). Comparison of Key informant and Survey methods for ascertainment of childhood Epilepsy in west Bengal, India. International Journal of Epidemiology, 27,672-6.
Pal, D K; Nandy, S; Sander, J.W.A.S. (1999). Towards a coherent public health analysis for Epilepsy. Lancet, 353; 1817-8.
Rani, Ajita (2012): Psychosocial study of Epilepsy- specific Be-liefs, Attitudes and Behavior in Rural Communities in the Districts of North India. Minor Research Project Report (2012), UGC, New Delhi (Unpublished).
Sridharan, R. (2002). Epidemiology of epilepsy. Current Sciences. Vol 82.No.6, 664-670.